Blogs from ME International
The Tool, The Means, The Target
25 January 2023
As with our metabolism and our thoughts, Myalgic Encephalomyelitis also slows down our actions. It was 2016 when I started understanding what M.E. was and it happened to be by chance that I came across the International Consensus Primer. It shocked me! Firstly, to find out so much had been written about an illness that supposedly had not been researched enough and, secondly, to acknowledge that there is no document like this in Spanish and that all published …
7 to 22: 15 Years with ME
23 November 2022
Spanish Translation of the ME International Consensus Primer for Medical Practitioners (ICP) is Now Available
25 August 2022
ME International appreciates the work done by Dr. Orrantia PhD MSc, Dr. Arturo Ortega MD PhD, Ms. María José Moya BA and Dr. Ona Albizu PhD for putting together this Spanish translation (download), or view HER.
The Sloth in the Jungle
09 March 2022
Hi everyone,
My name is Kayla.
In all areas of my 32 year long life I have been a voice for the little people in every aspect of my life including my career. So here I am Writing for ME International.
How to make pizza dough from scratch the ME way.
04 March 2022
Step 1 – read through new recipe.
Step 2 – forget what you read.
Step 3 – get everything out.
Step 4 – rest.
Step 5 – remember the recipe is for four pizzas which you know you can’t manage, so decide to cut the recipe in fourths.
The Illness That It's OK to Mock
12 December 2021
The illness in question is myalgic encephalomyelitis (ME). ME patients are sometimes labeled with ‘Chronic Fatigue Syndrome’ or CFS as well as ME/CFS.
The arguments contained in such articles are often scurrilous and baseless, and are calmly refuted by ME charities and patient groups …
Clarity for ALL
Updated 05 October 2022
The U.S. International Classification of Diseases (ICD-10-CM) number for myalgic encephalomyelitis is now G93.32. This change combines ME, CFS and ME/CFS under this same code. The previous ME code of G93.3 is NO LONGER a billable code in the U.S. …
NICE Guidelines Paused
23 August 2021
NICE reported on August 17, 2021 they had paused the release of guidelines for treating ME and CFS.
A draft appeared last November and the final version was initially scheduled for April, and reset for August. An August 17th article at The Times (UK) envisaged that any …
Help Us Help You
Updated 11 August 2021
ME International submitted a detailed response for the CDC call for comments…
ME International is an all volunteer organization with a small group of active volunteers. (No paid staff). ME International feels responding to this request for comments is of the highest priority and have dedicated many volunteer hours to this endeavor. This is a rare opportunity to explain the importance of proper diagnosis and treatment for people with myalgic encephalomyelitis.
Preparing Comments
Updated 29 November 2021
To see ME International’s response to the Systemic Review Report for Diagnosis and Treatment fro ME/CFS from 2015 which …
“This report was commissioned by the Centers for Disease Control and Prevention (CDC) to inform the development of a guideline on evaluation and management of myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS).
How to Hide a Disease
Updated 27 April 2021
First, equate it with hysteria. Cast suspicion on sufferers as neurotics and hypochondriacs.
Then conflate it with fatigue. Make fatigue the central focus and symptom, until it becomes the only symptom and focus.
Get a big pot and fill it with as many fatiguing illnesses as possible. Hide the disease in this pot and give the pot a name that emphasizes …
MEI Chat Rooms
29 March 2021
Recently, in accordance with our mission statement of reducing loneliness, we established the MEI Chat Rooms. This is a specific Facebook group that utilizes rooms as its sole purpose.
ME International Joins Long COVID Alliance
03 March 2021
Dear fellow ME patients.
The MEI Board recently made a challenging decision to join the Long COVID Alliance. This Alliance, led by Solve ME/CFS, has a goal of making sure that ME/CFS patients are considered in the upcoming NIH Long COVID research funding awards. The US Congress appropriated $1.15 billion to the NIH for this research. At this time there are 50 organizations including ME-I who have signed this Alliance.
Dr. Handout Based on the ICP
Updated 02 May 2021
The ME International Consensus Primer (ICP) for medical practitioners is a valuable tool for working with your doctor to get a diagnosis and treatment for myalgic encephalomyelitis (ME). Unfortunately, very few doctors are familiar with this important information.
MEI Pulse Oximeter Project
Updated 20 March 2021
In November 2020 it was decided by the ME International Board to ask for donations that would cover the purchase cost and shipment of a pulse oximeter to members.
If you are a member of ME International and would like a pulse oximeter, please send …
Confirming Diagnosis of ME - Brain Scans
Updated 02 Sept 2020
WHY DO BRAIN SCANS? – Encephalomyelitis means: inflammation of the brain and spinal cord. The WHO coded ME as a neurological …
#MyalgicE Videos - Understanding Diagnosis
Updated 30 May 2020
ME International has recently released its first video, entitled “Myalgic Encephalomyelitis – Understanding Diagnosis” on our YouTube channel.
Topics include: What is ME?; ME – The Lived Experience; How does ME relate to CFS; Getting an ME Diagnosis; Confirming a Diagnosis of ME; What Is Needed? and How to Improve the Quality of Life for ME Patients.
Mitochondria and ME
27 April 2020
Perhaps one of the most characteristic sings of Myalgic Encephalomyelitis (ME) is the intolerance to any type of exertion whether …
COVID-19: A Mirror Image of #ME?
23 April 2020
Since a novel virus turned the entire world upside down, this needs to be said for others to understand the predicament ME patients now find themselves in.
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