Håndtering af ME
Managing ME is similar to managing symptoms of Multiple Sclerosis. See a comparison HER.
Upon receiving a confirmed diagnosis of myalgic encephalomyelitis, managing symptoms requires a multi-step approach. To understand getting a diagnosis see our Har jeg MIG? side.
“The pathophysiology of ME and laboratory findings must be reflected in all treatment/management programs. Adverse reaction to exertion accompanied by a prolonged recovery period must be respected and accommodated. All health-care personnel must be knowledgeable about ME.” ICP pg 13
A Personalized Management & Treatment section within the IC Primer begins on page 13. Subsections include:
- Medication Principles and Caveats
- Revise Life-Style: Patient Self-Help Strategies
- Education and Personal Development
- Maximizing Sleep
- Nutrition, Diet and Hydration
- Energy Budget/Bank (monitoring heart rate)
Pharmaceutical and non-pharmaceutical treatments are offered for the following symptoms:
Remove Pathogens and Toxins (pg 16)
– Heavy Metals
Replenish Nutrients, Restore Homeostasis, and Relieve Symptoms (pg 16)
– Cellular oxygenation
– Acid/alkaline balance
– Vitamins and minerals
Neurological (pg 17)
– Sleep disturbances
– See our Sleep Problems page for more information
Pain (pg 17)
– Possible pathological types/components
– See our Pain Management page for more information
– See our handout for Low Dose Naltrexone (LDN) information
Cognition and Fatigue (pg 17)
– Post-exertional neuroimmune exhaustion (P.E.N.E.)
– See also” “Avoiding an ME CRASH – aka PENE” & our P.E.N.E. experience page
– Overload phenomena
Immune and Gastrointestinal (pg 18)
– Intestinal dysbiosis
Energy Metabolism and Ion Transport (pg 18)
– Orthostatic intolerance
– Dysautonomia International offers information about diagnosis and treatment of dysautonomia as well as support groups around the world.
– Neuroendocrine: Hypothalamic-Pituitary-Adrenal (HPA) Axis
Other Symptoms (pg 18)
– Altered mood
This 2 pg Dr. Handout offers a path to introduce medical professionals to the wealth of information found in the ICP.
Coping with Symptoms, created by the public Facebook group, North Carolina/Ohio ME & FM Support group, offers tips on a variety of symptoms including:
- Flu-like feeling
- Brain fog
- Muscle problems
- Restless leg
- Swelling ankles
- Mouth sores/dry mouth
- Sore throat
- Stomach problems/irritable bowel
- Irritable bladder/frequent urinary tract infections (UTI)
- Lymph gland swelling
- Sinus problems
- Light headed/weak/floor dipping feeling/dizziness
- Brain racing/panic attack/anxiety
- Skin rashes/hives
- Hand pain
- Sensitivity to light/sound/odors etc.
Svær ME offers unique management of symptom challenges. See our Severe ME page for more information.
If an emergency room visit is required, the “EMERGENCY ROOM INFORMATION” document from North Carolina/Ohio ME & FM Support group (public on Facebook) may be helpful; as well as our Emergency Room Info for #pwME webpage.