#MyalgicE Videos - Understanding Criteria
Posted: 06 May 2020
Updated: 30 May 2020
ME International has recently released its first video, entitled “Myalgic Encephalomyelitis – Understanding Diagnosis” on our YouTube Channel.
Klicken Sie auf HIER for the LONG version – Transcript
Klicken Sie auf HIER for the SHORT version – Transcript
- What is Myalgic Encephalomyelitis?
- ME: The Lived Experience
- How Does ME Relate to CFS?
- Getting An ME Diagnosis
- Confirming A Diagnosis of ME
- What Is Needed?, and
- How To Improve the Quality of Life for ME Patients
Many different disease descriptions have been created since the recognition and labeling of ME by Dr. Ramsay in the 1950s. Several criteria later broadened the patient population to include many patients who did not fit the original description.
In 2011 a group of experts with over 500 years of combined experience created a consensus criteria known as the International Consensus Criteria (#MEICC). ME-International supports the adoption of the #MEICC and the International Consensus Primer for ME (#MEICPrimer), which is a comprehensive primer for doctors.
We strongly believe that adoption of the #MEICC will ensure research is focused on the distinct ME patient population without including patients who fall into the wider category known as ME/CFS-SEID or CFS-Fukuda.
These videos discuss the history of ME, the lived experience, including recognition of the most severe patients, a full description of how to diagnose using the International Consensus Criteria as well as the challenges of getting a diagnosis. Proper diagnosis is vital for patients to get proper treatment.
ME-International believes that worldwide adoption of the #MEICC to diagnose and treat, is the fastest way to improve the quality of life of people with ME.
Information is not to be considered medical advice.
ME International Consensus Criteria (2011)
ME International Consensus Primer (2012): (English) To see the Primer in other languages, see our IC Primer page.
Please sign the #PwME4ICC petition at Change.org at https://www.change.org/p/the-us-department-of-health-and-human-services-cdc-adopt-the-distinct-disease-myalgic-encephalomyelitis-me-as-defined-by-icc-now