Blogs from ME International

A bumblebee perched on a purple cone flower whose petals are drooping.

7 to 22: 15 Years with ME

23 November 2022

Hello everyone
My name is Steph, I’m 22 years old.
 
15 years ago, I became too ill to go to school, which marked the moment I developed M.E.
Within a year I would go from having mild M.E to severe M.E, because of harmful “treatments” like G.E.T (Graded Exercise Therapy) advised by doctors.
 
My body has never recovered from this…
Image of the cover page of the ME IC Primer in Spanish.

Spanish Translation of the ME International Consensus Primer for Medical Practitioners (ICP) is Now Available

25 August 2022
ME International appreciates the work done by
Dr. Orrantia PhD MSc, Dr. Arturo Ortega MD PhD, Ms. María José Moya BA and Dr. Ona Albizu PhD for putting together this Spanish translation (download), or view HERE.

Image of The Sloth in the Jungle

The Sloth in the Jungle

09 March 2022
Hi everyone, 

My name is Kayla.
In all areas of my 32 year long life I have been a voice for the little people in every aspect of my life including my career.  So here I am Writing for ME International.

Image of Pizza

How to make pizza dough from scratch the ME way.

04 March 2022
Step 1
– read through new recipe.

Step 2 – forget what you read.
Step 3 – get everything out.
Step 4 – rest.
Step 5 – remember the recipe is for four pizzas which you know you can’t manage, so decide to cut the recipe in fourths.

Portrait image of Paul McDaid

The Illness That It's OK to Mock

12 December 2021
The illness in question is myalgic encephalomyelitis (ME). ME patients are sometimes labeled with ‘Chronic Fatigue Syndrome’ or CFS as well as ME/CFS.
The arguments contained in such articles are often scurrilous and baseless, and are calmly refuted by ME charities and patient groups …

Image of a magnifying glass showing G93.3 in front of a green background.

Clarity for ALL

Updated 05 October 2022
The U.S. International Classification of Diseases (ICD-10-CM) number for myalgic encephalomyelitis is now G93.32.  This change combines ME, CFS and ME/CFS under this same code.  The previous ME code of G93.3 is NO LONGER a billable code in the U.S. …

Text box regarding the paused NICE guidelines

NICE Guidelines Paused

23 August 2021
NICE reported on August 17, 2021 they had paused the release of guidelines for treating ME and CFS.
A draft appeared last November and the final version was initially scheduled for April, and reset for August. An August 17th article at The Times (UK) envisaged that any …

A photo of the paperwork sent to the CDC in response to their request for comments.

Help Us Help You

Updated 11 August 2021
ME International submitted a detailed response for the CDC call for comments…
ME International is an all volunteer organization with a small group of active volunteers. (No paid staff). ME International feels responding to this request for comments is of the highest priority and have dedicated many volunteer hours to this endeavor. This is a rare opportunity to explain the importance of proper diagnosis and treatment for people with myalgic encephalomyelitis.

Who what why puzzle pieces

Preparing Comments

Updated 29 November 2021
To see ME International’s response to the Systemic Review Report for Diagnosis and Treatment fro ME/CFS from 2015 which …

“This report was commissioned by the Centers for Disease Control and Prevention (CDC) to inform the development of a guideline on evaluation and management of myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS).

Image of many marbles with one marked ME

How to Hide a Disease

Updated 27 April 2021
First, equate it with hysteria. Cast suspicion on sufferers as neurotics and hypochondriacs.
Then conflate it with fatigue. Make fatigue the central focus and symptom, until it becomes the only symptom and focus.
Get a big pot and fill it with as many fatiguing illnesses as possible. Hide the disease in this pot and give the pot a name that emphasizes …

Image of MEI Chat Room logo

MEI Chat Rooms

29 March 2021
Recently, in accordance with our mission statement of reducing loneliness, we established the MEI Chat Rooms.  This is a specific Facebook group that utilizes rooms as its sole purpose.

Image of a polished wooden gavel on a striking pad.

ME International Joins Long COVID Alliance

03 March 2021
Dear fellow ME patients. 
The MEI Board recently made a challenging decision to join the Long COVID Alliance. This Alliance, led by Solve ME/CFS, has a goal of making sure that ME/CFS patients are considered in the upcoming NIH Long COVID research funding awards. The US Congress appropriated $1.15 billion to the NIH for this research. At this time there are 50 organizations including ME-I who have signed this Alliance.

A graphic of a doctor sitting in front of a laptop with the text "This doctor is using a guide to the IC Primer for diagnosing and treating Myalgic Encephalomyelitis (ME)".

Dr. Handout Based on the ICP

Updated 02 May 2021
The ME International Consensus Primer (ICP) for medical practitioners is a valuable tool for working with your doctor to get a diagnosis and treatment for myalgic encephalomyelitis (ME).  Unfortunately, very few doctors are familiar with this important information.

Picture of a pulse oximeter on a finger

MEI Pulse Oximeter Project

Updated 20 March 2021
In November 2020 it was decided by the ME International Board to ask for donations that would cover the purchase cost and shipment of a pulse oximeter to members.
If you are a member of ME International and would like a pulse oximeter, please send …

Image of Brain Imaging

Confirming Diagnosis of ME - Brain Scans

Updated 02 Sept 2020
WHY DO BRAIN SCANS? – Encephalomyelitis means: inflammation of the brain and spinal cord. The WHO coded ME as a neurological …

Image of video thumbnails

#MyalgicE Videos - Understanding Diagnosis

Updated 30 May 2020
ME International has recently released its first video, entitled “Myalgic Encephalomyelitis – Understanding Diagnosis” on our YouTube channel.
Topics include: What is ME?;  ME – The Lived Experience; How does ME relate to CFS; Getting an ME Diagnosis; Confirming a Diagnosis of ME; What Is Needed? and How to Improve the Quality of Life for ME Patients.

Cartoon image of Mitochondria

Mitochondria and ME

27 April 2020
Perhaps one of the most characteristic sings of Myalgic Encephalomyelitis (ME) is the intolerance to any type of exertion whether …

Graphic of a double rainbow with text.

COVID-19: A Mirror Image of #ME?

23 April 2020
Since a novel virus turned the entire world upside down, this needs to be said for others to understand the predicament ME patients now find themselves in.