The information provided at this site is not intended to diagnose or treat any illness and is not to be considered as medical advice.
We have included links to many sites that contain information on disability. Most are from the United States. We would love to have information from other countries on what is currently offered for disability. If you have additional information, please email Admin@ME-International.org.
Information/links on this page may be outdated. It is important to verify the information with a disability professional before using or submitting said information.
SSR 14-1P: Titles II and XVI: Evaluating Cases Involving Chronic Fatigue Syndrome (CFS)
SSR 99-2P has been rescinded. This information replaces SSR 99-2P.
“As mentioned, we include ME as a subtype of CFS. When we refer to CFS in the SSR, we include ME.” (Federal Register Vol. 79, No. 64, page 18752)
The Sleepy Girl Guide to Social Security Disability
Everything No One Ever Tells You About Living on Social Security Disability
Social Security Administration Information
Apply Online for Disability Benefits
Form SSA-16 | Info You Need to Apply for Disability Benefits
Residual Functional Capacity Questionnaire – CHRONIC FATIGUE SYNDROME
This form from RepresentMyself.com is one that your doctor can fill out to document your disease. It uses the term Chronic Fatigue Syndrome because that is the term used by the SSA when the form was created.
Social Security Disability videos
by Ginsberg Law
Information & Technical Assistance on the Americans with Disabilities Act
US DoJ General Sources of Disability Rights Rights Information
Martindale-Hubbell Lawyer Locator – A database of legal professionals.
Massachusetts ME/CFS & FM Association Disability Handbook
“Most of the material in this Handbook remains very current in 2015. However, some detailed information such as the income and asset eligibility for SSI change periodically.”
The Disability Benefits Information Website
(United States and Canada)
“This website is an outgrowth of the internet discussion list, Disinissues. We hope that it can serve as a gathering point for information and advice about the process of applying for, appealing, and renewing disability insurance from private Long-Term Disability insurers and the U.S. Social Security Administration (SSDI).”
Social Security Disability And Supplemental Security Income
Brochure prepared by the National Organization of Social Security Claimants Representatives (from the Dysautonomia International website)
When fundraising to assist someone with their issues/needs, it’s important to know that these donations can affect the patient’s government benefits. This article “How to Fundraise without Losing Your Benefits” from How to Get On is an important read.