Active Facebook Groups
The purpose of this group is to gather together to further the goals of the non-profit ME-International. MEI’s focus is on the adoption of the International Consensus Criteria and the label myalgic encephalomyelitis. There are many other groups that will continue the debate over whether this is the way to go, but in this group we are setting aside that debate and focusing on the importance of the adoption of the ICC.
Please answer the questions when asking to join.
This group meets daily and is a place to meet and greet others with ME. The MEI Chat rooms use Video calling. However, people are welcome to leave their cameras off and also to mute and just listen. You can come and go as you please. This is for casual conversation. We talk about our day-to-day struggles and also our hobbies, families, or whatever anyone has on their mind. In addition to a daily room, anyone can open a room anytime and there’s usually someone around who is interested in chatting. We also host an informational group weekly where we break down the #MEICPrimer into easy to understand topics.
The current schedule (which may vary) is:
- Everyday 1pm-3pm EST
- Monday 9-11am EST (craft room)
- Tuesdays 3:15-5pm EST (history room)
- Wednesdays 3:15-5pm EST (history room)
- Wednesdays 5pm-7pm EST
- Thursday 4-5pm EST (ME-International.org informational)
- Fridays 7pm-9pm EST
Once you are a member, just click a link to enter a room. Links will be posted as rooms open.
Please fill out the poll on the MEI Chat Room post to help us know what hours works best for everyone.
For more information, please see our blog HERE.
The following groups, hosted by ME International, are private. Each represents specific topics related to our patient group. If you are interested in joining any of these groups, please send an email to Admin@ME-International.org and we will send you an invite to join.
ME International Caregiver Group
This group was formed for those that are caregivers of people with ME so they can share and exchange experiences.
ME International Creatives Group
This group is for members that like to create items like jewelry, painting, etc.
ME International Essential Oils Group
This group is for those interested in learning and sharing about using essential oils.
ME International Patient Resource Page Group
This group was formed to list resources for patients.