Myalgic Encephalomyelitis - Adult & Paediatric International Consensus Primer (ICP) for Medical Practitioners
MYALGIC ENCEPHALOMYELITIS (ME) is not a diagnosis to be given lightly. ME patients suffer a living death that is life changing and, in most cases, lifelong. These patients will need to avoid many activities a normal person would undertake.
Due to the severe nature of the disease they will have to reduce or avoid interaction that is overstimulating which may include interaction with people. The progression of the disease is not well understood but a significant percentage may become so ill as to require a caregiver to meet daily needs and a subgroup may require 24/7 care and tube feeding.
FIRST – DO NO HARM – or in the case of ME patients
Do as little harm as possible while trying to help the patients improve quality of life.
ME International Consensus Primer
This primer was written to provide clinicians a one-stop, user-friendly reference for ME.