De luiaard in de jungle
Posted: 09 March 2022
Guest blog by Kayla Doyle.
Mijn naam is Kayla.
In all areas of my 32 year long life I have been a voice for the little people in every aspect of my life including my career. So here I am writing for ME International.
When I first looked at the information on the website I thought “WOW. How informative.” But my simple brain-fogged brain went “ Yeah, I can not read that.” LOL!! Now I don’t know if it’s because I was a whirlwind student and paid absolutely no attention in school, or if it was a combination of brain fog and ADHD. So here I am putting some of this into council estate, Independent chronically ill and also winging life language.
Today I will be telling you all about one of the symptom groups you will find you have when living with ME.
The first thing I will be covering is the Neurocognitive symptoms you will have.
Literally what does that word even mean and why is it so big!!
Through a little research I’ve figured out it’s brain stuff!
So with this brain stuff when having ME symptoms you will find that you…
- Struggle to understand information.
Like me reading the big words and my brain just going eh?? LOL This can also come in with vocal conversation like questions etc.
“How many sugars do you want in your coffee?”
Sugars?? Coffee?? How many?? “Oh yeah two please” after staring at your kin blankly for a while figuring out what they’re trying to say to you.
- Your concentration will break!
This is a funny one for me because I have ADHD too so I have extra double broken concentration. My friend overseas always laughs and says “Oh look! A shiny!” Concentration gone!
I do find however doing two simple tasks at once helps. I tend to put a nice frequency music on the TV and have an audio book playing on Alexa.
- Confusion and Disorientation.
This one’s also a biggie for me. It’s a little more than the normal adult “Why did I walk into the kitchen?”!
I find I will be half way through doing something and I’m like “Why am I here and what am I doing?” The worst is when It happens outside and I’m like “AHHH” LOL!!
I suppose it makes life interesting though.
- Cognitive overload.
Another word I looked at and was like eh… Cognitive. Why not just say brain or mind? Lol!!
Okay so basically brain overload…Over stimulation.
This mainly happens to me when socializing.
There are so many questions… How are you? What have you been up to? How’s work? Does this dress look okay? Holy Wowwwww! Stop asking me things! LOL!!
I very luckily have a friend I see that I can say “Hold on a sec. I’m going to go and meditate. I’ll be back with answers.” After a few deep mindful breaths I can work it out.
- Making Decisions.
Self explanatory. I like this symptom description lol!
It’s a little more than the “Where do you want to eat?” question though.
- Slowed Speech.
Also self explanatory. Yayyy.
I often get asked if I’m drunk with my Slow and slurred speech.
- Acquired or exertional Dyslexia.
Okay… LOL!! Eh?? Inside and outside Dyslexia. Eg.. How you read, write and speak! Honestly, the things I say are hilarious!!
Laugh at yourself and find joy in the fact that your way of speaking has the ability to make people roll on the floor laughing!
So what if I’ve told my dad there’s a Hole Mill in his garden. (Mole Hill)
- Short term memory loss.
Yay! This final *Neurocognative symptom is self explanatory too.
Me and my grandad with dementia just have the best conversations.
Okay so that is the end of my explaining the Neurocognitive symptoms of the Disease that just keeps on giving.
Just adding in one more funny!! As I write this my spell check is absolutely positive that Neurocognitive is spelt wrong!! So haa!! If my computer can’t spell it then how can we process it?!!
I really hope that at least one person found this helpful. If I made someone smile, that is an extra bonus.
I wish you all the luck in the world in your ME journey and if you ever need anyone to reach out to for support or a non judgemental conversation, then contact the ME International Board members and they will get you on the right track!!
I am also always happy to hear from an ME warrior. So if you would like to connect with me personally, then just ask!
Much Love and Stay Strong!!
*Note: The list of neurocognitive impairments can be found on page 7 of the #MEICPrimer
Patricia McGurrin-Pistocco – 8/3/2022 01:40:06 pm
1, 2, 4, 5, and 8 is what l struggle with!!