ME beheren

Upon receiving a confirmed diagnosis of myalgic encephalomyelitis, managing symptoms requires a multi-step approach. To understand getting a diagnosis see our Heb ik ME? pagina.

“The pathophysiology of ME and laboratory findings must be reflected in all treatment/management programs. Adverse reaction to exertion accompanied by a prolonged recovery period must be respected and accommodated. All health-care personnel must be knowledgeable about ME.” ICP pg 13

A Personalized Management & Treatment section within the IC-primer begins on page 13.  Subsections include:

Pharmaceutical and non-pharmaceutical treatments are offered for the following symptoms:

Remove Pathogens and Toxins (pg 16)
– Microorganisms
– Toxins
– Heavy Metals

Replenish Nutrients, Restore Homeostasis, and Relieve Symptoms (pg 16)
– Cellular oxygenation
– Hydration
– Acid/alkaline balance
– Vitamins and minerals

Neurological (pg 17)
– Sleep disturbances
– See our Sleep Problems page for more information

Pain (pg 17)
– Possible pathological types/components
– See our Pijnbeheersing page for more information
– See our handout for Low Dose Naltrexone (LDN) information

Cognition and Fatigue (pg 17)
– Post-exertional neuroimmune exhaustion (P.E.N.E.)
– See also” “Avoiding an ME CRASH – aka PENE” & our P.E.N.E. experience page
– Overload phenomena

Immune and Gastrointestinal (pg 18)
– Intestinal dysbiosis

Energy Metabolism and Ion Transport (pg 18)
– Orthostatic intolerance
Dysautonomie International offers information about diagnosis and treatment of dysautonomia as well as support groups around the world.

Urinary difficulties
– Neuroendocrine: Hypothalamic-Pituitary-Adrenal (HPA) Axis

Other Symptoms (pg 18)
– Altered mood
– Gynecological

Deze 2 pg Dr. Handout offers a path to introduce medical professionals to the wealth of information found in the ICP.

Coping with Symptoms, created by the public Facebook group, North Carolina/Ohio ME & FM Support group, offers tips on a variety of symptoms including:

  • Mold
  • Sleep
  • Flu-like feeling
  • Brain fog
  • Muscle problems
  • Exhaustion
  • Restless leg
  • Swelling ankles
  • Mouth sores/dry mouth
  • Sore throat
  • Stomach problems/irritable bowel
  • Nausea
  • Sweats
  • Irritable bladder/frequent urinary tract infections (UTI)
  • Fibromyalgia
  • Lymph gland swelling
  • Sinus problems
  • Light headed/weak/floor dipping feeling/dizziness
  • Brain racing/panic attack/anxiety
  • Skin rashes/hives
  • Bruising/anemia
  • Headaches
  • Osteopenia/osteoporosis
  • Hand pain
  • Sensitivity to light/sound/odors etc.
  • Tinnitus

Ernstige ME offers unique management of symptom challenges. See our Ernstige ME-pagina for more information.

If an emergency room visit is required, the “EMERGENCY ROOM INFORMATION” document from North Carolina/Ohio ME & FM Support group (public on Facebook) may be helpful; as well as our Emergency Room Info for #pwME webpage.