Upon receiving a confirmed diagnosis of myalgic encephalomyelitis, managing symptoms requires a multi-step approach. To understand getting a diagnosis see our Heb ik ME? pagina.
“The pathophysiology of ME and laboratory findings must be reflected in all treatment/management programs. Adverse reaction to exertion accompanied by a prolonged recovery period must be respected and accommodated. All health-care personnel must be knowledgeable about ME.” ICP pg 13
A Personalized Management & Treatment section within the IC-primer begins on page 13. Subsections include:
Pharmaceutical and non-pharmaceutical treatments are offered for the following symptoms:
Remove Pathogens and Toxins (pg 16)
– Heavy Metals
Replenish Nutrients, Restore Homeostasis, and Relieve Symptoms (pg 16)
– Cellular oxygenation
– Acid/alkaline balance
– Vitamins and minerals
Neurological (pg 17)
– Sleep disturbances
– See our Sleep Problems page for more information
Immune and Gastrointestinal (pg 18)
– Intestinal dysbiosis
Energy Metabolism and Ion Transport (pg 18)
– Orthostatic intolerance
– Dysautonomie International offers information about diagnosis and treatment of dysautonomia as well as support groups around the world.
– Neuroendocrine: Hypothalamic-Pituitary-Adrenal (HPA) Axis
Other Symptoms (pg 18)
– Altered mood
- Flu-like feeling
- Brain fog
- Muscle problems
- Restless leg
- Swelling ankles
- Mouth sores/dry mouth
- Sore throat
- Stomach problems/irritable bowel
- Irritable bladder/frequent urinary tract infections (UTI)
- Lymph gland swelling
- Sinus problems
- Light headed/weak/floor dipping feeling/dizziness
- Brain racing/panic attack/anxiety
- Skin rashes/hives
- Hand pain
- Sensitivity to light/sound/odors etc.
Ernstige ME offers unique management of symptom challenges. See our Ernstige ME-pagina for more information.
If an emergency room visit is required, the “EMERGENCY ROOM INFORMATION” document from North Carolina/Ohio ME & FM Support group (public on Facebook) may be helpful; as well as our Emergency Room Info for #pwME webpage.