The History of ME

Brief History of ME - Handout

Below are some downloadable Adobe pdf files with a brief historical synopsis of ME including some of the more well-known outbreaks like at the Royal Free Hospital in 1955, and Lake Tahoe in 1984.

English                 Spanish

ME – Understanding Diagnosis (inclds History) 2020 (13:15)

ME – Understanding Diagnosis (inclds History) 2020 (20:36)

More History Links

ME Outbreaks

“Following is a list taken from The Clinical and Scientific Basis of Myalgic Encephalomyelitis – Chronic Fatigue Syndrome, Byron Hyde, ed. This is one of the best books ever published on ME/CFS. Although it was published more than 20 years ago, it contains a wealth of information that is still relevant today.” ~ AMMES website

De la neurastenia a la enfermedad postesfuerzo: evolución de los criterios diagnósticos del CFS/ME
From neurasthenia to post-exertional disease: evolution of the diagnostic criteria for chronic fatigue syndrome/myalgic encephalomyelitis (English)
by Íñigo Murga and José-Vicente Lafuente – Spain (Basque) 02 Jun 2019
Within this report is a brief history of benign ME and CFS.

A Brief History of Myalgic Encephalomyelitis
by Byron M. Hyde, M.D. (October 2021)
​Within Nightingale’s October 2021 Newsletter, Dr. Hyde discusses “A Brief History of M.E.”, along with “Years of USA Health Centers Bureaucratic Incompetence”.

ME/CFS: Past, Present and Future
by Wier & Speight (U.K.) (03 August 2021)
​“The history of human civilisation is littered with examples of natural phenomena, including human disease, initially explained by dogma. The dogma is initially created to fill a void in comprehension, but it is eventually replaced by rational scientific understanding. The creators of such dogma are often authoritarian, hierarchical figures who then ferociously defend their own creation. … All of these examples illustrate a tendency to assume that, if no pathological mechanism can be demonstrated, then, by default, psychological disorder must be the problem. Inherent in such an assumption is the arrogant belief that routine laboratory tests infallibly exclude physical disorder.”

“The story of ME/CFS is a prime example of such dogma. Due to the fact that routine laboratory tests for the diagnosis of this condition usually produce “normal” results, the problem must be with the psyche. … In some circumstances, the tendency of exponents to hold on to their dogma is reminiscent of the tenacious way conspiracy theorists are wedded to their particular false narrative. Sadly, the argument over the cause of ME/CFS would probably have remained academic but for one grim reality: treatment based on psychological dogma has damaged patients, some very severely.”

Videos

The Tangled Story of ME/CFS (U.K.) lays out the history of ME and CFS quite well. Most of the time is dedicated to ME, so that would have been best used in the title. (Date unk, 1:11:35)

This Video by Michael VanElzakker presents a good and understandable history of myalgic encephalomyelitis, along with how the vegus nerve operates. (12 March 2020, 26:04)

Video: What About Me?
Directed by Susan Douglas (2018, 85 min)
Available on Amazon video (free to Prime members) and on Vimeo. In English with CC. This documentary covers the history of ME from Florence Nightingale to present day including XMRV and Ampligen.